Monday, 26 September 2011

Personal Budget Users need more choice - In Control

Personal budget users need more choice

Shortcomings must be addressed if value for money is to be secured in the future for users of social care personal budgets once they are extended to all eligible users by April 2013, according to a report published today by the National Audit Office. Most people who use personal budgets to pay for their social care report improved wellbeing (according to In Control data). But more needs to be done to ensure that care markets deliver a genuine choice of services to all users, that support is available to help them exercise choice, and that essential services relied on by vulnerable people continue to be provided in the event of the failure of a major provider.
Today's report demonstrates that some people are using their personal budgets in innovative ways, such as pooling them with others to pay jointly for a personal assistant to help with their care needs. Most people who use a personal budget report improved wellbeing although a small minority feel worse off. Some also reported that they found buying care for themselves difficult.
Data in the report is from our National Personal Budget Survey which is based on POET.
Some local authorities report that personal budgets have led to achieving better value for money in social care, but the overall impact on cost has not been evaluated. And, whilst there are examples of good practice in some local authorities, such as offering help to those with personal budgets to plan their care, these are very localised.
Local authorities are also responsible for those that fund their own care, if they run out of money. However, 60 per cent of local authorities do not know how many "self-funders" there are in their area. Few local authorities offer formal support to help prevent people falling back on state funding. The NAO estimates that the total cost to the taxpayer of the state having to pay for self-funders who run out of money could rise from £0.5 billion to £1 billion per year by 2035.
The Department of Health is responsible for overall social care policy, but it has few means of influencing the way that local authorities deliver care. Local authorities have powers to assess needs and manage care. The Department should determine where market oversight is not sufficient, and if more central oversight is necessary. The recent financial problems faced by Southern Cross illustrate the need for government to develop a system to address serious provider failure.
Amyas Morse, head of the National Audit Office, said today:"As the population ages and more pressure is put on social care, the Department must ensure that its oversight of the care market is robust, that people have access to the information and support that they need and that it has arrangements in place in the event of large providers getting into financial difficulty."
Care Services Minister Paul Burstow, said: "The report's comments on provider failure are a helpful contribution to our wider work on market oversight for social care.
"As outlined in a written ministerial statement last week, the government is considering whether additional measures of market oversight are required.  We will shortly be publishing a discussion paper seeking views on this issue."
To download the report visit the National Audit Office website.
Last Updated : 15 September 2011. Page Author: Laura Bimpson.

Consultation - Caring for our Future - Department of Health

The government is asking for disabled people's view about future funding of the social care system - it is essential that as many people as possible have a say - below is what it is all about and the key priorities identified - and at the bottom is the link to the consultation document and website (PB Team)

About ‘Caring for our future’

Care and support is something that affects us all. We all know someone, a family member or friend, who needs additional care or support to lead a full and active life. It might be because they are getting older, have developed an illness or disability, or have lived with a disability from birth. In fact, most of us will require care and support services at some point in our lives.
Why do we need to change the care and support system?
Like most developed countries, improving the current social system is one of the biggest challenges we face today. The care and support in this country needs to change because:
  • Society is changing, and we need to ensure the system is sustainable for the long term
  • People want greater choice and control over their care and support
  • People’s expectations are rising
  • Care is expensive, and people often face very high care costs without being able to protect themselves
What has the Government done already?
We have already taken major steps forward towards an improved social care and support system and shown our commitment to change. Last November the Government published its Vision for Adult Social Care which set out the principles for a modern system of care and support. We have also set out our priorities for helping carers in the next steps for the Carers Strategy.
In recent months, two independent Commissions have sent reports to Government on two different aspects of care and support. In May, the Law Commission published recommendations for simplifying social care law, and in July the Commission on Funding of Care and Support published recommendations for reforming the way that people pay for care and support. We also received a report from the Palliative Care Funding Review, which sets out how we could ensure integrated, responsive, high quality health and care services for those at the end of life.

What’s next?
We have identified six areas where we believe there is the biggest potential to make improvements to the care and support system. Between now and December, we will be having discussions on these areas with a range of people and organisations involved with care and support. The reports from the two Commissions, and that on palliative care, contain some important and valuable proposals and we will build on them during our engagement, setting them in the wider context of social care reform. However, we also want to have a wider discussion about every aspect of the system to help us decide what to do.
Making changes to the care and support system is not simple and they cannot be made all at once. We will need to spend more on care and support as our society ages and, in this challenging economic environment, we need to weigh up what the priorities for reform are and produce a realistic plan for change.
So, over the next three months, we will be speaking with a range of people and organisations involved with care and support. We want to discuss what people’s priorities are, and this will feed directly into a White Paper that will be published in April 2012, alongside a progress report on funding reform. The White Paper will set out our approach to reform to start the process of transforming our care and support system.

Priorities: areas for discussion

We have identified six areas that we believe have the biggest potential to make improvements to the care and support system, and we want to hear your views. Please add your comments below, or complete our feedback form.
We have also asked a key leader of the care and support community to help the Government to lead the discussions for each of the six areas that have been identified for improvement.

1. Improving quality and developing the workforce

The quality of care people receive is a major concern for users, their families and the public more widely. Read more about quality… What do you think? a. Should there be a standard definition of quality in adult social care… Read more →1. Improving quality and developing the workforce
| 12 Comments

2. Increased personalisation and choice

The needs and circumstances of every person receiving care and support are unique to them. Whether a person funds their own care or receives a personal budget we want people to have genuine choice and control over the services they… Read more →2. Increased personalisation and choice
| 5 Comments

3. Ensuring services are better integrated around people’s needs

People’s lives rarely fit into neat compartments. Getting the care we need may involve several different services and agencies. We want to discuss how local services can work better together to meet people’s needs. Read more about integration… What do… Read more →3. Ensuring services are better integrated around people’s needs
| 1 Comment

4. Supporting greater prevention and early intervention

Across health, social care and public health, we want to focus on prevention and early intervention to help people maintain their independence and improve their health and well-being. Read more about prevention and early intervention… What do you think? a.… Read more →4. Supporting greater prevention and early intervention
| 2 Comments

5. Creating a more diverse and responsive care market

People want choice and control over their care and support, so they can receive the services which best meet their needs. In the future, individuals will increasingly be purchasing their own services. Those funding their own care will continue to… Read more →5. Creating a more diverse and responsive care market
| 1 Comment

6. The role of the financial services sector in supporting users, carers and their families

The financial services industry believes it can play a more important role to help people plan and prepare for the costs they will face in older age. The choice and range of financial products, such as insurance, to help people… Read more →6. The role of the financial services sector in supporting users, carers and their families
| 2 Comments

Your views on the recommendations made by the Commission on Funding of Care and Support

As part of the Caring for our future engagement process, we also want to hear people’s views on the recommendations made by the Commission on Funding of Care and Support and how we should assess these proposals, including in relation… Read more →Your views on the recommendations made by the Commission on Funding of Care and Support
| 3 Comments
 
http://caringforourfuture.dh.gov.uk/files/2011/09/SocialCareFeedbackForm_acc.pdf - response form
http://caringforourfuture.dh.gov.uk/category/priorities/ - website for online comments

Do you employ a Care Worker / PA? Are you paying the right amount to the HMRC?

Making the PAYE/NICs system fairer. The following article is important for all Personal Budget / Direct Payment recipients who privately pay a PA or care worker. If you live in Kensington and Chelsea and you are not sure if this relates to you, or you are confused about the payments you have to make to the HMRC (Inland revene), please contact the PB Team on 020 8960 8888

From 6 April 2012 HMRC will have a new power to tackle the tiny minority of employers who are determined not to pay over the money they deduct from employees via PAYE/NICs. Where an employer presents a serious risk HMRC will require them to provide a security to protect against non-payment.
This will not affect employers who are meeting their obligations on time or those employers who have genuine payment difficulties.
We remain committed to helping businesses who are in financial difficulties. This change will not apply to employers who

• have agreed time to pay arrangements
• are receiving support under the Business Support Service
• only employ personal employees or carers.
However, it isn’t fair that those employers who choose not to pay PAYE and NICs to HMRC should gain a significant financial and business advantage over those who do pay, and this power will help us tackle that.
This change supports the Government’s priority of a fairer tax system. It aims to bring seriously non-compliant employers back into the system by paying their share.
We consulted widely about this new power. This approach is not new as HMRC can already require a security for VAT and most of the other indirect taxes.
Where we think a security is necessary we will calculate the amount of the security based on the evidence of the individual case. The employer can appeal to the Tribunal against the notice requiring a security, or the amount. Alternatively they can ask to have their case reviewed first by our internal review team before any Tribunal hearing.
As with the comparable VAT securities, there will be a criminal sanction for not providing a security when one has been required, with a fine of up to £5000.
The most common form of security is a cash deposit held by HMRC or paid into a joint HMRC/taxpayer interest bearing bank account. A security can also be a performance bond which is similar to a third party guarantee. It may be provided by any bank, building society or other financial institution approved by us.
If you have problems paying us please contact us as soon as possible – go to www.hmrc.gov.uk/payinghmrc/problems/cantpay.htm

Employer's bulletin

Paper Employer Bulletins are no longer issued, you must go online
The latest version of the Employer Bulletin Issue 39 has just been published. This edition contains lots of useful information and also identifies 3 essential articles that you need to read. These are highlighted on the contents page.

Sunday, 25 September 2011

Scale of cuts has 'no bearing' on services for disabled people

Knowsley has come out top in a study that reveals some local authorities are managing budget reductions much better than others. Mary O'Hara reports
A lack of consistency in the provision of services for disabled people was highlighted in the Scope report.
 
Knowsley council in Merseyside is a shining example of how, with a few "creative steps", some local authorities are defying assumptions that budget cuts inevitably lead to worse services for disabled people.
Its recently opened Centre for Independent Living was developed as part of the council's health and wellbeing initiative and establishes direct partnerships between the NHS and social care services. It works in conjunction with local user-led organisations to make sure local people have a say in how services are delivered. The centre acts as a "hub" for access to statutory and voluntary services under one roof. Taken alongside other projects, including disability day centres in community settings such as leisure centres, these services help to "empower" disabled people, says the council.
"We work closely with partner organisations and service users to ensure that local people can access high quality care that is responsive to their needs and preferences. This in turn enables us to achieve greater budget efficiencies, reducing the need to make cuts to frontline services wherever possible," explains a council spokeswoman.
Knowsley is one of the local authorities singled out for praise in a study, by the disability charity Scope, that assesses the impact of disability related cuts on disabled families across England and Wales.
The report, Coping with the Cuts, published this week, found that some councils have created "innovative" ways to ensure frontline services for disabled people are not unduly affected in the rush to make budget savings.
Creative steps
"Surprisingly, the report shows that the scale of cuts across an area has no bearing on the extent to which disabled people are affected," says Scope chief executive Richard Hawkes. "We know that every local authority has to make cuts and there is no simple solution to protect frontline services. Yet some local authorities have taken creative steps to reduce the negative impact on disabled residents.
"That is not to say that this is not a difficult time for disabled people living in these areas," he adds. "But we must commend those local authorities that have taken the initiative to approach budget cuts in this way."
Councils such as Knowsley – which was named in the report as "best coping" English council overall – have built on existing innovative services or found ways to make savings without blanket percentage cuts, the report concludes. It may be tough – and thousands of disabled people may still be bearing the brunt of cuts – but that is far from the complete picture, it says.
Claudia Wood, who co-authored the report, says Knowsley stands out because it scored highly on a number of key criteria set by the researchers. "There is no set formula for success. Every local authority is having to slog and try their hardest. But Knowsley had a lot of financial pressure yet tried to preserve services. That's what all [councils] in the top 10 did."
Knowsley council says it has tried hard for a number of years to ensure "a more holistic" approach to disability, including integrating services from health to sport, resulting in "seamless" access for people with a range of support needs. Crucially, says the council spokeswoman, a programme of service integration over a number of years means Knowsley has been able to introduce efficiencies while protecting frontline services.
Coping with the Cuts was commissioned largely as a response to growing concerns that disabled people were being disproportionately hit as councils struggled with the new financial realities. Researchers at the thinktank Demos, which conducted the research for Scope, examined 152 councils in England and 22 councils in Wales with responsibility for social care.
They compiled data on councils' budgets and services using a combination of freedom of information requests and direct approaches to the councils. In order to map the impact of cuts they used a measure that looked at the volume of cuts being made alongside a series of elements relating to service delivery, such as charges levied directly for services and the "eligibility criteria" applied by councils to qualify for access to specific services.
Interviews with a number of disabled families showed the impact of councils' approaches on older disabled people living with support, parents of disabled children (see below) and young adults moving from children's to adults' services, as well as the support services they received, from care in the home to respite, leisure and education in the statutory, voluntary and private sector. Most significant, interviewees were having to deal with several negative impacts simultaneously including personal budget reductions or restrictions, increased charges for services, restricted eligibility and the closure of services.
Although Coping with Cuts did not set out to name and shame individual councils or to suggest no cuts are necessary, it places a spotlight on a number of local authorities that it says are "best coping" with budgetary challenges. Among the top ranking councils are Peterborough and Oxfordshire. Lower performers include Gateshead and Lambeth council in south London.
The researchers identify practice common to best coping councils, such as the integration of services, "bringing in care, health and often housing and leisure" as well as a "capabilities approach to disability" where the focus is on "what people can do", not on what they cannot. The researchers also single out how the direct involvement of service users in designing services – and sometimes even in delivering them – can play a role in producing more effective, cost-efficient provision.
The report makes clear that smaller budgets need not inevitably lead to frontline cuts, higher charges or poorer quality services. "Our measure enabled us to look beyond how much local authorities were cutting to how they were cutting and whether it was affecting their frontline disability services," the report says.
Coping with the Cuts reaches some surprising conclusions. For example: it found that "coping scores" were mixed across regions and urban and rural areas; some councils bordering one another with similar budgets and demographics were given markedly divergent scores; if a disabled person lives in a deprived area it does not necessarily mean they are more likely to fall foul of cuts.
"This suggests that councils strategies to deal with budget cuts can go a long way to mitigating the negative effect on disabled people," the authors conclude.
A lack of consistency in service provision for disabled people across England and Wales is also highlighted. The report suggests that this may, in part, be down to the fact that many councils do not appear to know how many disabled people are living in their area. As a result, "those in national and local government have only a limited idea of how budgetary cuts and service reforms affect disabled people," it claims.
Hawkes says the findings are "a cautionary tale" for the government's 'localism' agenda. "Some local authorities will always seek to innovate. But in other areas, residents will feel the full brunt of cuts," he says. "[In those places,] the government's claim that it is 'protecting the vulnerable' will continue to ring hollow."
Flawed methodology
A number of councils near the top of the rankings have welcomed the research as evidence that their strategies are paying off despite unprecedented pressure on budgets. Others, including those nearer the bottom of the table, have strongly criticised the research with some, including Westminster, suggesting the Demos methodology is flawed and that some of the data is inaccurate.
Wood refutes any suggestion that the research is less than robust. She says the data collected for the study was obtained directly from councils and the research was careful to measure only criteria that could be compared "objectively between councils".
"While no measure will ever be able to capture everything, what this one does is to make sure we don't treat any local authority unfairly," she argues.
The authors of the report make an explicit plea for councils to learn from each other and to share best practice. If they do, the argument goes, the overall impact of cuts could be less deleterious for disabled people.
Back in Knowsley, local resident Paul Doyle is unsurprised that his local council is being recognised as a leader in disability services. The 50-year-old, who was paralysed from the chest down after a car accident five years ago, says there are good reasons why other local authorities would do well to look at what Knowsley is doing. "It has been so beneficial having support services available to me right on my doorstep," he says. "I hope that all disabled people in the UK will be able to access a similar level of services in the near future."

'Councils need to consult more with families'

Ona Ramanauskas' daughter Grace is 10. She has severe learning disabilities and a mild visual impairment, and over the years has required varying levels of support. When younger, she was able to attend a mainstream specialist after-school service. But as she got older and her needs became more complex, one-to-one support became a necessity.
For the most part, Ramanauskas says the family (her husband is a paramedic) has been able to cope. She gave up a full-time career to work part time and Grace has had some financial support from North Tyneside council, which helps pay for a carer.
The first sign that things might be about to get harder came this summer when the number of days Grace was able to access a summer play scheme, and get the kind of one-on-one care she needs, were suddenly cut. "It came out of the blue," Ramanauskas says. "We planned for a certain number of days so that I could get the respite I needed. With very little warning we were told that the number of days Grace was entitled to were being cut."
When she challenged the decision, the council told Ramanauskas that there were alternative schemes available. "The ones we saw just weren't suitable for Grace's needs," she says. "I could pay for something – and at times I have paid – but I can't afford it."
Ramanauskas got through the summer by managing to adjust her work schedule but it is the uncertainty about what might happen next that worries her.
She adds: "I have relied on [council-funded] schemes during school holiday periods. I can't tell you how vital they have been for me and for Grace. Councils need to consult with more families before they do this kind of thing. How am I to know that there aren't more cuts to come? How am I supposed to plan?"
http://www.guardian.co.uk/society/2011/sep/13/coping-with-cuts-councils-disabled-services?INTCMP=SRCH

There's a deafening silence of service users in the Social Care funding consultation -Guardian

There's a deafening silence of service users in the social care funding consultation

Could it be that their views don't chime with the government's preferred way forward, says Peter Beresford
The government has scheduled a new white paper on social care for April next year. It will pull together key recent recommendations for the radical reform of social care funding, legislation and delivery systems. At a King's Fund health thinktank conference on Tuesday, A New Future For Social Care?, Emily Thornberry MP, Labour's shadow care spokesperson, made a plea to return to traditional parliamentary procedures. "In the past, we'd have had a green paper, then a public consultation, then a white paper," she said. "Now we're moving straight to a white paper."
The government has also announced an "engagement" exercise, which will take place over the autumn. Caring for Our Future: Shared Ambitions for Care and Support is presented as "an engagement with people who use care and support services, carers, local councils, care providers, and the voluntary sector about the priorities for improving care and support". It is scheduled to run until early December.
Six "key leaders from the care and support community" have been selected to help lead discussion over six key areas. One leader comes from a carers' organisation. There is a representative from the private insurance industry, and from the Association of Directors of Adult Social Services. So local government, the private and voluntary sectors and carers are all represented. Yet there is not one service user or representative of a service user-led organisation. This, despite all the government's talk of "user-led services", "choice and control" and "nothing about you without you".
The Department of Health says it is committed to "co-production" with service users and their organisations. It even set up its own co-production group, made up of service users and carers, which has played a constructive role in taking forward the personalisation agenda.
Why, then, aren't service users central to this social care consultation which will form the basis of a crucial white paper? What consequences might this have? Service users and their organisations have long argued that the most effective and inclusive consultations are the ones they are involved in.
Perhaps the government feels it already knows what social care service users have to say. We know that many disabled people have fared particularly badly under the cuts to welfare benefits. A recent Demos report highlights that some local authorities are scoring much worse than others in protecting disabled people from being overly disadvantaged by cuts in local services.
Or might it be that service users' views are increasingly seen as too hot to handle by government? While the Dilnot Commission, like New Labour funding proposals before it, rules out free social care paid for by general taxation, this proposal has long commanded strong support from service users, their organisations and allies.
Perhaps the real issue is a political reluctance to encourage any further pressure towards putting social care funding on the same footing as that which has made the NHS the success it is? Even though this might offer the only sustainable high quality social care likely to gain public consensus.
• Peter Beresford is professor of social policy at Brunel University
http://www.guardian.co.uk/society/joepublic/2011/sep/22/social-care-funding-service-user-silence

Saturday, 24 September 2011

Peer Support and its role for PB / Direct Payment Users - The Centre for Welfare Reform

Peer Support

Authors: Kate Fulton and Claire Winfield

It has long been acknowledged that the most important and effective form of support is Peer Support. Yet it has been hard for local authorities to create the right conditions for Peer Support to flourish. Too often local leaders try to make Peer Support fit within a service-dominated culture rather than encouraging, welcoming and respecting the expertise of their own citizens. This discussion paper describes some of the innovative Peer Support approaches that are emerging and encourages local leaders to build respect for Peer Support into the heart of their approach to personalisation.

The paper can be downloaded in PDF format from the following link:
http://www.centreforwelfarereform.org/uploads/attachment/294/peer-support.pdf

Other interesting reports regarding Personalisation/ Personal Budgets etc can be found in the "library" section the right hand column on the following web page: http://www.centreforwelfarereform.org/projects/personalised-support.html

Other interesting reports can be found on the following web page
http://www.centreforwelfarereform.org/library/by-date/

Evaluation of Self-Directed Support Test Sites in Scotland

Evaluation of Self-Directed Support Test Sites in Scotland

This evaluative study was commissioned to assess the impact of interventions implemented within 3 local authority test sites to improve uptake of self-directed support ( SDS). The study, which lasted 2 years, used a mix of methods to involve and consult service users, carers, social care professionals and representatives of various national organisations. While care should be taken in generalising the findings to other areas, our literature review clarified that many of the issues and challenges that emerged were similar to, and reflect challenges other local authorities may encounter.
Main Findings
Those who accessed SDS packages during the test sites, were positive about their support and satisfied with the flexibility and choice that SDS had provided.
The test sites improved access to SDS especially for people with learning disabilities, but did little to promote SDS to other groups, for example, those with mental health problems, from Black or Minority Ethnic groups, older people, those who have addictions or homeless people.
In spite of considerable Scottish Government investment in SDS test sites, fewer than 150 new individual SDS arrangements were set up. This suggests that significant time and investment in infrastructure are needed to implement major policy initiatives.
None of the test sites had directly addressed issues around mixed funding packages, so the potential to integrate or join up funding streams e.g. with the NHS, could not be assessed.
The paradox at the heart of SDS was a (mis)perception by staff, service users, and carers of SDS as an alternative to, direct services and even, Direct Payments ( DPs). New and parallel SDS systems to those delivering DPs were created by the test sites.
Active promotion of SDS, including DPs, increased the numbers of people opting for payments instead of direct services to pay for more flexible, individualised care and support.
All test sites invested in specialist SDS teams and project managers to support development of new systems and administrative processes, as well as generating a body of practice expertise. Consequently, some service users, carers and professionals perceived SDS as separate to both Social Work support and DPs.
None of the test sites was able to cut 'red tape' or reduce bureaucratic or administrative requirements. Instead, by designing new support systems for SDS, they experienced a (possibly temporary) increase in bureaucracy associated with assessment and resource allocation.
Only one of the test sites used test site monies to invest in strategic service development.
By the end of the test site period the 3 local authorities had resolved to move towards mainstreaming SDS with support from their senior management and Councillors.
Introduction
This evaluation investigated how 3 local authority test sites implemented key Scottish Government themes to improve uptake of self-directed support ( SDS), starting with a baseline assessment, and examining how and what they implemented. The study also explored the issues that arose for the test sites, and how their activities impacted upon service users' and carers' experience, as well as the work of frontline social work staff.
The evaluation brief was to:
Describe current SDS policy, activity and practice;
Develop the evaluation tools with test site managers
Examine the extent to which each test site addressed 3 key areas
Assess the impact of the 3 interventions in each test site in progressing SDS
Identify implications for policy and practice within the wider context
Disseminate to relevant stakeholders.
Policy Context
Promoting self-directed support ( SDS) is part of the Scottish Government's wider programme to increase individuals' choice and control over their community care and support arrangements.
SDS is an approach to delivering care and support that is embedded within wider policy frameworks including those of social inclusion, participation and more recently, 'co-production'. As an umbrella term, SDS encompasses many concepts and practices in social care including Direct Payments ( DPs), as well as Individual Budgets ( IBs). DPs are payments in lieu of services provided directly to individuals assessed as being in need of community care services. IBs enable individuals to either purchase their own support packages to meet their assessed personal, social, and to a lesser extent, healthcare needs, or at least to determine how this budget will be spent on their support.
Since the Community Care and Health (Scotland) Act 2002, it has been mandatory for everyone entitled to publicly funded community care services, with a few exclusions, to be offered the option of a DP by the local authority. While the early evidence base shows that those in receipt of DPs generally consider the benefits far outweigh the challenges (Homer & Gilder, 2008; Witcher et al, 2000), implementation has been slow in Scotland. Research has continued to highlight differences in uptake across community care groups: people with physical disabilities who are under 65 years are still more likely to be in receipt of DPs than any other group (Scottish Government Statistics, 2010).
As part of its activities to promote SDS, the Scottish Government selected 3 local authorities - Dumfries & Galloway, City of Glasgow and Highland - to act as test sites to trial targeted activities to address 3 themes in order to increase the uptake of SDS. The 3 target themes - leadership and training; cutting 'red tape'; and bridging finance - were based on past research. The test sites were funded between January 2009 and March 2011).
SDS: An Evolving Concept
A fundamental issue from the start of the test sites and the evaluation was that SDS was an evolving concept, and there were different ideas about what it was. Initially, SDS and DPs were referred to almost synonymously. There was much debate between the test sites and Scottish Government about SDS and what this should mean in the test sites.
The consensus of opinion from early stakeholder interviews at national and local levels, was that SDS refers to a spectrum of options ranging from the 'sharpness' or 'purity' of DPs at one end to more individually tailored local authority provided services at the other. The key requirement, regardless of the mechanism chosen to deliver the support, was that the individual could exercise more choice and control over his/her social care than had previously been possible.
During the lifetime of the research, Scottish Government and COSLA published a 10-year strategy for SDS in Scotland, which aimed to set out and drive a cultural shift towards SDS becoming the mainstream approach in social care. The national Strategy defines SDS as:
"The process for deciding on support through SDS is through co-production…The mechanisms for getting support through SDS can be through a Direct Payment ( DP) or through the person deciding how their individual budget is allocated by the council to arrange support from a provider…." (Scottish Government, 2010, p7).
Given such a broad definition the evaluation needed to move from simply counting numbers of DPs to looking at individual experiences, as well as the processes set up to implement an SDS approach.
Stage 1: Baseline
A key finding at this stage was that at local test site level, and to an extent at the national level, DPs were perceived as failing to deliver choice, flexibility and control and to be overly prescriptive, bureaucratic, and using 'old style' care management processes.
Across Scotland, implementation of SDS, and DPs in particular, was inconsistent. Local leadership to promote SDS via DPs was perceived to vary greatly, and, other than some notable exceptions, local authorities had not taken a strategic or holistic approach to implementing SDS.
Inadequate, or even non-existent, support infrastructures for service users and carers were a major barrier to implementing SDS across Scotland. Linked to this, was the view that at local level in particular, the development of SDS policy had not enlisted sufficient input from service user and carer organisations and was in danger of being professional-led. Some service user and carer groups were thus sceptical that implementing SDS was a cost-cutting exercise.
Stage 2: Evaluating Process & Impact
While operational definitions of SDS were broader than DPs, in practice, the majority of SDS packages in all 3 test sites involved a cash transfer, either direct to the service user or a third party, usually a family member. However, there was a misperception by service users, carers and staff that SDS was an alternative to DPs, and test sites ran parallel SDS and DP systems throughout the period.
All 3 test sites created a project lead/manager role and this post was critical to taking developments forward. They also all created SDS teams and had project boards, although Glasgow initially planned for the project manager to work with existing teams. While this strategy worked well for the test sites in relation to supporting the small numbers of service users and staff involved with new systems, it may have limited the extent of systemic change.
In relation to cutting red tape, the local SDS teams' efforts went into designing or re-designing systems for assessment and resource allocation that were more 'fit for purpose', which in all cases created a parallel, and therefore, additional bureaucracy. In the short term, this was felt to be necessary until new systems were accepted and assimilated into the local authority but it did create an additional burden for service users and staff.
On the whole, test site activities were short on specifics regarding addressing the theme of bridging finance. The impact of this theme was therefore, difficult to ascertain.
Individual Experiences of SDS
While the experience of the quality of assessment processes varied, overall, carers and service users interviewed felt the assessment had been comprehensive and inclusive, with outcomes based upon what the individual wanted. There were, however, differences between the test sites in the degree of flexibility experienced in terms of, for example, employing relatives and the appropriateness of funding particular activities.
SDS had expanded choice and control for the vast majority of those we interviewed. More flexible support was being offered and there were positive outcomes for individuals. From the individual accounts however, it was not always clear whether positive comments related solely to the model of SDS or because the test sites had enabled access to some who had not been eligible for services previously, or to higher levels of social work support.
Stage 3: Implications and lessons
Given that some similar concerns emerged across all 3 test sites, it seems likely that these are not specific to the test sites but are more general challenges facing all local authorities attempting to make changes in the direction of SDS.
The implementation of SDS using a managerial and project based model rather than a strategic approach had limitations: a specialist SDS or personalisation team offered expertise and management of the ' SDS project' but also created the impression that SDS was separate from, and operated differently to, the local authority and other systems, such as DPs. There was a risk of unhelpful duplication and confusion. Unless senior managers take a lead role, there is always the danger that initiatives will be marginalised, regardless of the commitment of those managing and involved in it.
The new SDS processes created by the test sites worked extremely well overall for the selected individuals who benefited from SDS during the test site period, offering increased choice, flexibility and control. The uptake of SDS and of DPs had increased as a result, and through the work of dedicated teams, the local authorities found they could be more creative and innovative in the ways they worked with people. The key issue now is maintaining such innovation and flexibility for greater numbers of individuals.
Clearly involvement of service user and carer organisations and investment in the necessary support infrastructures are essential as well as continued availability of funding for the care packages themselves. In the foreword to the national Strategy, political leaders state that "more of the same will not work". It will be essential therefore for all local authorities to grapple with the challenges faced by these test sites, and to find a way to implement this shift from existing service provision to greater involvement and co-production of care and support. The outcomes of this Strategy are worthy of continuing assessment.
Research Design & Methods
The evaluation had 3 main stages: Stage 1) establishing the baseline; Stage 2) evaluating process and impact; and Stage 3) reflecting on findings for wider policy and practice. Various methods were used to gather data including:
Literature review (Manthorpe et al 2011)
Collation and analysis of secondary information about SDS and community care services
Interviews with test site local stakeholders
Interviews with national stakeholders
Learning Sets in each test site
Monitoring framework - quarterly monitoring of test site action plans and collection of test site information about recipients of SDS packages
Case studies - 30 individuals, their carers and assessors/care managers were interviewed
Evaluation stakeholder event -March 2011
Analysis of all findings from the test sites.
Although a cost-analysis of the test sites was not possible for various reasons, interviews were conducted with finance officers in the 3 sites at Stages 1 and 2, to discuss their perspectives, especially about how national ( CIPFA) guidelines on introducing 'light touch' monitoring were being implemented by the test sites. Also, although not a key requirement of the evaluation brief, the relationship between Adult Protection ( AP) and SDS was explored in very general terms and this revealed that greater links needed to be made between these areas of work.
References
Homer, T. & Gilder, P. (2008), A Review of Self Directed Support in Scotland, Social Research Report, Edinburgh: Scottish Government.
Manthorpe, J., Hindes, J., Martineau, S., Cornes, M., Ridley, J., Rosengard, A., Hunter, S., Little, S. & Gray, B. (2011) Self Directed Support: A Review of the Barriers and Facilitators, Edinburgh, Scottish Government Social Research.
Scottish Government (2010), Self-directed Support (Direct Payments), Scotland, 2010, A National Statistics Publication for Scotland, Edinburgh: Scottish Government.
Scottish Government (2010), Self Directed Support: A National Strategy for Scotland, Edinburgh: The Scottish Government.
Witcher, S., Stalker, K., Roadburg, M., & Jones, C. (2000), Direct payments: The Impact on Choice and Control for Disabled People, Edinburgh: Scottish Executive Central Research Unit.
Research Findings No.109/2011
This document, along with full research report of the project, and further information about social and policy research commissioned and published on behalf of the Scottish Government, can be viewed on the Internet at: http://www.scotland.gov.uk/socialresearch. If you have any further queries about social research, or would like further copies of this research findings summary document, please contact us at socialresearch@scotland.gsi.gov.uk or on 0131-244 7560.

http://www.scotland.gov.uk/Publications/2011/09/20090707/1

News - Limited uptake of Personal budgets in Scotish Pilot Areas - Community Care Magazine

Limited uptake of personal budgets in Scottish pilot areas

Jeremy Dunning
Friday 23 September 2011 17:45
Just 150 new personal budget arrangements were set up in three Scottish self-directed support pilot sites over the past two years despite “significant investment from the Scottish government”, a study has found.
The report into the three test areas – Dumfries & Galloway, Glasgow and Highland – found that while self-directed support did work well for those with learning disabilities, significant time and investment would be required for self-directed support to take off across the country and for all groups.
One issue cited by the report was that self-directed support was set up in parallel to existing systems of allocating support to people, creating the impression that it was distinct from direct payments, leading to limited appeal and creating the danger of duplication and confusion.
“While this strategy worked well for the test sites in relation to supporting the small numbers of service users and staff involved with new systems, it may have limited the extent of systemic change,” said the report.
Implementation of personalisation has been slow in Scotland. Last year, the Scottish government pledged to make self-directed support central to social care. However in many areas of Scotland direct payments are perceived to be failing to deliver choice, flexibility or control, while self-directed support has been implemented inconsistently and in many areas had not enlisted service user and carer organisation input.
The three pilots, which ran from January 2009 to March 2011, were tasked by the Scottish government to address themes of leadership and training; cutting 'red tape'; and the need to provide up-front investment to set up self-directed support systems. The report found leadership in all three sites was critical, but that all three experienced an increase in bureaucracy linked with redesigning systems for assessment and resource allocation.
The study also found that groups other than those with learning disabilities, such as those with mental health problems, from black or minority ethnic groups, older people, those with addictions or homeless people saw no improved access to self-directed support.
The report added: “Clearly involvement of service user and carer organisations and investment in the necessary support infrastructures are essential as well as continued availability of funding for the care packages themselves.”

http://www.communitycare.co.uk/Articles/23/09/2011/117504/limited-uptake-of-personal-budgets-in-scottish-pilot-areas.htm

News - Social Worker fail to Signpost service users to support

Social workers fail to signpost service users to support

(note from PB team - this article refers to peer support and other support for PB users - Personal Budget Users and self funders in Kensington and Chelsea can access the Personal Budget Project at ADKC for indendent professional support and are welcome to come to the Personal Budget User group / PB Surgery to get peer support. For more information contact Martha or Jenny H on 020 8960 8888 / pbsupport@adkc.org.uk )

Mithran Samuel
Wednesday 21 September 2011 13:27
Social workers are failing to signpost service users to valuable sources of support from peers and community organisations because of a lack of awareness of what's on offer and insufficient trust in users' own abilities.
That was the conclusion from two reports published today by think-tank the Centre for Welfare Reform, as part of its development of a model of adult social work that avoids the bureaucracy associated with the implementation of personalisation in some areas.
The studies, on peer support and community engagement, found people with personal budgets were missing out on valuable information, advocacy and help in support planning from fellow service users and local groups outside the care system such as churches, leisure clubs or neighbourhood groups.
This was because social workers were often not aware of what was available locally and did not have sufficient trust in service users to manage the support planning process without professional advice.
Peer support offered something distinctive to service users by enabling them to build relationships with people who had had similar experiences, boosting self-esteem and improving motivation among personal budget holders, the report on this issue found.
However, it added: "Many peer support organisations and networks have expressed their readiness to be involved in the future of personalisation, but often find they don't have the access to the people who would benefit most from their assistance."
In addition, many community groups were already helping people with support needs in an informal way, but "needed to be organised in a way that made sense to people looking to direct their own support", said the study on community engagement.
Recommendations included that social workers should:
• Offer services users access to a peer supporter as routine.
• Ask service users if they want to be a peer supporter when carrying out reviews of their needs.
• Beware creating a "professional version" of peer support.
• Build up a register of community groups able to support service users, looking beyond social care providers.
• Simplify the support planning process to enable community groups to support individuals in identifying how their needs can be met.
Both reports were written for the centre by Kate Fulton and Claire Winfield of disability consultancy Paradigm, based on work they had done with councils including York, North East Lincolnshire and Blackburn with Darwen.
This is part of the centre and Pardigm's work to develop a "new script for social work", in which practitioners enable helping personal budget holders to plan their own support, with help from infomal networks
http://www.communitycare.co.uk/Articles/21/09/2011/117482/social-workers-fail-to-signpost-service-users-to-support.htm

Tuesday, 20 September 2011

News - Reassessments of service user to care cuts were tokenistic - Community Care Magazine

Reassessments of users subject to care cuts were 'tokenistic'

Jeremy Dunning
Monday 19 September 2011 15:59
Service users subject to cuts say reassessments of their needs were a "rubberstamping exercise", says a report on a council that has raised eligibility thresholds.
Users said that reassessments took place after decisions had already been made. They were also poorly handled, functional and conducted by an unfamiliar care manager, and took no account of a person's changing circumstances, said the report by Poole Local Involvement Network (Link).
The study, commissioend by Poole Council, looked at the impact six months on of the authority's decision to raise thresholds from moderate to substantial and increase charges for care services last October. It was based on interviews with 24 people affected by the changes, which are expected to save £870,000 in a full year.
It found a lack of support was offered to those whose service had been removed. Many of those interviewed lacked the required personal resources to use information provided by the council to find alternative support. Letters outlining the changes were variously described as confusing and impersonal.
Among those interviewed, 10 people had high negative impacts with the risk that these will present to the council with increased care needs; three had small negative impacts and which may worsen over time; 10 had no adverse reaction to the changes and one had a positive impact.
It identified a particular risk of social isolation among those who could no longer attend day centres because of a lack of confidence, personal motivation and family support. "The impact of no longer using the day centre service was consistently significant. Most showed real vulnerability and even fear of what may become of them, " the report said.
Louise Bate, of Poole LINk, said: "Our research report suggests that people affected by these service changes could come back to the council with increased care needs, if they aren't offered more support.
"Almost two-thirds of survey respondents are now doing nothing on the days that they used to attend a day centre. There is a real risk of increasing isolation if people aren't supported to find alternatives."
The Link called on the council to commission a third sector organisation to provide advocacy support and to provide alternative early detection services to avoid issues escalating into a crisis.
Peter Adams, the council's cabinet member for adult social care, said the council will contact 75 people no longer receiving services to discuss their experiences and provide further information and advice if required, and would work more closely with the community sector and see how it could better meet local needs.
http://www.communitycare.co.uk/Articles/2011/09/19/117472/reassessments-of-users-subject-to-care-cuts-were-tokenistic.htm

Saturday, 17 September 2011

News - Westminster slammed for disability cuts - Ham and High

New report says council is third worst local authority in the country with “very bad” coping level

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Westminster Council has reacted angrily after it was rated the third worst local authority in the country for cuts to disability services in a new independent report.
The ‘Coping With The Cuts’ report, written by Demos and funded by disability charity Scope, places Westminster 150th of 152 local authorities in England.
The report describes the borough’s cuts to disability services as “high” while it’s coping level is “very bad”.
However, Westminster health boss Cllr Daniel Astaire has hit out at the report’s “fatally flawed” analysis, arguing the council will spend £130million on social services this year.
“This is a cheap attempt to gain publicity using fiddled figures to frighten our residents,” he said.
“This analysis is fatally flawed in arguing that cash sums are the primary measure of the success of social services. They are not.
“What you need is money, dedicated staff and services that prolong and enrich lives. That’s what we do in Westminster every day.”
The report found a number of budget cuts have been made in Westminster over the past year including an 8.9 per cent reduction in adult care and support and a 15.98 per cent drop in older people’s budget.
It also found the cost of respite services has increased by 500 per cent, while it noted the council recently raised the eligibility care criteria from those with moderate needs to those with substantial or critical.
Scope chief executive Richard Hawkes describes the report as a “groundbreaking study” that “reveals the reality facing many disabled families”.
He said: “It is possible to assess accurately the impact cuts have on disabled people and in doing so it shows that disabled people are being badly affected.
“Coping With The Cuts is not about attacking local authorities and forcing them into action.
“It should arm disabled people and their families with the tools to hold their local authority to account over budget decisions.”
Peter Hay, president of the Association of Directors of Adult Social Services, has also criticised the report’s “spurious methods”.
He said: “Rather than helping directors work their way through making imaginative responses to the reduction of public spending, the whole report is ruined by a relentless focus on sensationalism.
“They have ranked councils using criteria that are discredited.
“This distracts from a report which could have been used to work with people with disability, and assessing progress made with the emerging features of good services.”

http://www.hamhigh.co.uk/news/westminster_slammed_for_disability_cuts_1_1023842

Friday, 16 September 2011

Do you employ Personal Assistants/ private care workers? Minimum wage

If you employ private Personal Assistants / Care workers you need to pay them at or above the "national minimum wage".

The amount changes every October and for October 2011- September 2012, the rates will increase to the following:

Rates from 1 October 2011

The NMW rates are reviewed each year by the Low Pay Commission and from 1 October 2011:
  • the main rate for workers aged 21 and over will increase to £6.08
  • the 18-20 rate will increase to £4.98
  • the 16-17 rate for workers above school leaving age but under 18 will increase to £3.68 
  • the apprentice rate, for apprentices under 19 or 19 or over and in the first year of their apprenticeship will increase to £2.60
Past NMW rates can be viewed on the Low Pay Commission website.
If you are a Personal Budget recipient in Kensington and Chelsea and are concerned that you are paying the right amount - you can contact the Personal Budget team at ADKC for advice. Phone 020 8960 8888 or email Jenny H at pbsupport@adkc.org.uk

Thursday, 15 September 2011

National Audit Office "Oversight of user choice and provider competition in care markets" report

Health & social care

Oversight of user choice and provider competition in care markets

Shortcomings must be addressed if value for money is to be secured in the future for users of social care “personal budgets” once they are extended to all eligible users by April 2013.

"As the population ages and more pressure is put on social care, the Department must ensure that its oversight of the care market is robust, that people have access to the information and support that they need and that it has arrangements in place in the event of large providers getting into financial difficulty"
Amyas Morse, head of the National Audit Office, 15 September 2011
Shortcomings must be addressed if value for money is to be secured in the future for users of social care “personal budgets” once they are extended to all eligible users by April 2013, according to a report published today by the National Audit Office. Most people who use personal budgets to pay for their social care report improved wellbeing. But more needs to be done to ensure that care markets deliver a genuine choice of services to all users, that support is available to help them exercise choice, and that essential services relied on by vulnerable people continue to be provided in the event of the failure of a major provider.
Today’s report finds that some people are using their personal budgets in innovative ways, such as pooling them with others to pay jointly for a personal assistant to help with their care needs. Most people who use a personal budget report improved wellbeing although a small minority feel worse off. Some also reported that they found buying care for themselves difficult.
Some local authorities report that personal budgets have led to achieving better value for money in social care, but the overall impact on cost has not been evaluated. And, whilst there are examples of good practice in some local authorities, such as offering help to those with personal budgets to plan their care, these are very localized.
Local authorities are also responsible for those that fund their own care, if they run out of money. However, 60 per cent of local authorities do not know how many “self-funders” there are in their area. Few local authorities offer formal support to help prevent people falling back on state funding. The NAO estimates that the total cost to the taxpayer of the state having to pay for self-funders who run out of money could rise from £0.5 billion to £1 billion per year by 2035.
The Department of Health is responsible for overall social care policy, but it has few means of influencing the way that local authorities deliver care. Local authorities have powers to assess needs and manage care. The Department should determine where market oversight is not sufficient, and if more central oversight is necessary. The recent financial problems faced by Southern Cross illustrate the need for government to develop a system to address serious provider failure.

Councils urged to boost user choice by opening up care markets - Community Care Magazine

Councils urged to boost user choice by opening up care markets

Jeremy Dunning
Thursday 15 September 2011 00:43
The roll-out of personal budgets will only deliver personal value for money if councils take steps to increase choice for users in the social care market, the National Audit Office said today.
In some areas, there was a shortage of service providers, particularly personal assistants, brokerage services and support for people with complex needs, and a lack of resource had limited attempts by local authorities to encourage new providers into the market, found the NAO.
Typical problems cited were recruitment difficulties among providers with many potential staff put off by long hours and low pay, which was doubly worse in isolated and sparsely-populated rural areas. High rent in some urban areas was also cited as a problem for new providers.
The report, on user choice and competition in care markets, said new entrants to the market were vital in order to bring about competition, to introduce innovative new services, and help make the market more dynamic, improving value for money in services.
It pointed to good practice in this area, which included councils targeting support to encourage new providers by subsidising adviser posts in voluntary sector advice and support providers; reducing the cumbersome bureaucracy involved in local authority tendering and contracting processes, and providing advice and in some cases limited financial support to help new small-scale care businesses.
It also said that the government must put in place arrangements to protect social care services from the failure of large providers, in the light of the Southern Cross case. The Department of Health will shortly consult on proposals to improve financial regulation for this purpose.

http://www.communitycare.co.uk/Articles/2011/09/15/117442/personalisation-councils-urged-to-boost-user-choice.htm

Tuesday, 13 September 2011

How did the agreement between three boroughs to share services come about - Guardian

How did the agreement between three boroughs to share services come about?

Merging frontline services and management teams is an intricate task, so how has a trio of councils managed to come to an agreement?

How did three London boroughs come to an agreement to share services? Photograph: Smith Collection/Getty Images
Triborough bridge in New York spans three rivers, but in the UK the word tri-borough has taken on a new meaning in public services. The triborough agreement between the London boroughs of Westminster, Kensington and Chelsea, and Hammersmith and Fulham, which was announced earlier this year, has so far been one of local government's more successful approaches to making savings by merging services.
Other councils have attempted to share services and chief executives but the usual barriers keep getting in the way. Politics, territoriality, fear of a loss of sovereignty, even personal clashes: all these have made it difficult for local authorities to work more closely together.
Derek Myers, chief executive of Kensington and Chelsea, acknowledges that the initial discussions about how the three councils could work together were "slightly tricky, slightly tense", but adds that from the initial conversations, "remarkable things began to happen" and that there was "a remarkable degree of professionalism" about the discussions.
It is no wonder the talks were tense, given that the merger aimed to save £100m by 2014-15 and many of the jobs set to go will be in senior and middle management. The changes mean cutting 500 jobs across the three boroughs, with 175 from senior management.
Writing in a forthcoming pamphlet on shared services, Myers says there was agreement across all the professionals involved that management teams would need to be merged – and that this should involve a far wider appraisal of skills and expertise across the boroughs than just a simplistic, cost-cutting exercise.
"What was fascinating and encouraging in those early discussions was the understanding and enthusiasm for the role of management," he writes. "This was a realistic appraisal that management and expertise was an essential component of successful commissioning and delivery, but that expertise – worth paying a proper market rate for – needed to be spread more widely."
Myers says there has been a proliferation of specialist expertise in local government over the past decade, in areas such as business continuity, community safety, commissioning and procurement, and customer insight. "All of these people were making a contribution to the delivery of excellent services. We wanted to keep them. This was no nihilistic attack on non-jobs."
The triborough agreement includes reducing the number of chief executives from three to two, combining corporate overheads such as IT and HR, integrating back office and frontline services, and merging children's and education services under a single director. In the summer, the councils agreed formally to set up joint management teams for children's services, adult social care and libraries.
The first triborough director of children's services, Andrew Christie, the director of children's services at Hammersmith and Fulham, takes up his new post next month. In an open letter to staff, Christie has acknowledged that this would mean "some difficult change". He wrote: "It is a huge challenge and the thinking behind combining our services is that we will be able to save a significant part of that money [£100m] without impacting on frontline services and frontline staff."
There have been other innovations as part of the triborough agreement. The councils have set up an employee-led mutual organisation to deliver education support services to schools, in line with the government's desire to spin out services from the public sector. The new organisation, one of the government's pilots, is expected to be up and running by next April, once it has struck a deal with a private sector partner, which will own half the shares. It will include former employees of all three councils.
Political leadership
Triborough working is still in its infancy and agreement between these three councils has been helped by the fact that they have a similar political make-up and professional culture – which shouldn't be underestimated. "There are clear similarities between these councils and there has been very clear political leadership of the agreement," says John Tizard, director of the Centre for Public Service Partnerships. "Of course you want good operational and management leadership to make such agreements work, but clear and visible political leadership has been very important."
Tizard also believes good planning is vital, as is not trying to do too much at once. "The three boroughs have focused on children's services first, rather than trying to do everything, and have been clear about their objectives," he points out. "You have to have more than just financial objectives. There should be good operational and service reasons."
So what dangers could lie ahead? "There's always a risk that you move too fast elsewhere, without the same level of planning that has gone into the initial project," Tizard responds.
It seems that it is not just building the bridge that counts but maintaining it.
• The pamphlet, A Problem Shared, will be published on 6 October by the Society of Local Authority Chief Executives and the Guardian's Public Leaders Network.
http://www.guardian.co.uk/society/2011/sep/13/triborough-agreement-london-shared-public-services

Monday, 12 September 2011

Social care cuts - how is your council coping? Demos

Thinktank Demos have released a map of how well councils are doing in the face of cuts.

This is what they say about RBKC:

Kensington and Chelsea

  • Rank: 111 out of 152 councils in England

  • Cuts Level: Low cut

  • Coping Level: Poor

How we made the Coping Index.
Below is some further information about cuts in your local area:
  1. -3.19 per cent budget change to disabled children and families' care and support
  2. -5.5 per cent budget change to adult care and support
  3. -1.61 per cent budget change to older people's care and support
Kensington and Chelsea have increased the cost of using community meals services and local day centres by 3 per cent, using specialist transport by 4 per cent and the cost of accessible leisure activities by 5 per cent. The council has also closed one day centre due to low levels of interest from local disabled residents.
http://disability-cuts-map.demos.co.uk/local-authority/kensington-chelsea/

In terms of the other boroughs in the new "triborough", the combined Westminster, Hammersmith and Fulham as well as RBKC:
H and F has been rated as having a good ability to cope, despite very high cuts,
Wesminster rated as having a very poor ability to cope, with high cuts is the third worse borough in England.

What this will mean in the up-coming years remains to be seen. (For information about other Councils just select the name of the council in the drop-down menu.)

Saturday, 10 September 2011

news - rolling out Personalisation to mental health service users - Community care magazine


Rolling out personalisation to mental health service users

Jeremy Dunning
Friday 05 August 2011 16:19
A project led by Mind to tackle the low take-up of self-directed support among mental health service users has returned some positive results, writes Jeremy Dunning
When Tony Martin took up a direct payment four years ago he was only the second mental health service user in Derbyshire to do so.
Latterly, the 53-year-old has been part of a government-funded project to assess and tackle the still low take-up of direct payments and personal budgets among mental health service users, relative to other client groups.
The Putting Us First project, overseen by charity Mind and delivered by the University of Bristol's Norah Fry Research Centre, ran from October 2008 until March this year. It aimed to increase take-up of personalised care among mental health service users and change professional attitudes that stood in the way.
Martin was one of its four champions - mental health service users receiving self-directed care appointed to champion personalisation in their areas.
An evaluation of the project, which also included focus groups with service users, a national conference and the publication of a series of information booklets, has been seen exclusively by Community Care.
It concluded that there was "considerable confusion [and] misinformation" about personalisation among mental health service users and the professionals who work with them.
The evaluation found a lack of trust among some professionals who felt that mental health service users lacked the insight to manage their care. For their part, some service users associated personal budgets with "disability" and did not identify themselves as disabled.
The job of the champions was to tackle these attitudes by raising awareness and delivering training to professionals, and to use their own experience to convey the benefits of personalisation to service users.
The four champions covered Sandwell in the West Midlands, Derbyshire, Hertfordshire and Poole and rural Dorset. Each had differing approaches, based on their past experience and local knowledge.
They reached 630 people at 90 events. The content varied from one-to-one sessions with professionals or service users to presentations for larger groups on how direct payments could be used. There was also a regional conference.
Although the champions' work lasted only six months, the evaluation found that offers of direct payments to mental health service users increased, reflecting the change in the attitudes of professionals.
One visited a community mental health team, expecting 15 minutes of questions, but was kept for two hours because of the team's limited knowledge of direct payments, let alone personal budgets.
The report said a key indicator of the need for the champions' work was that, in two of the areas covered, neighbouring councils were keen to invite the champion in.
Feedback to the champions from professionals who attended training events was "universally positive", the report found.
It concluded: "What the champions achieved was at least the start of an attitude change, so that professionals could see the positive side of personalisation."
Mind's policy and campaigns manager, Anna Bird, says: "It was important for professionals to realise that a personal budget wasn't just about handing over a pot of cash to an individual. It's about the individuals choosing the services.
"That's where the champions' work has been vital because they've been able to spend a lot of time with the professionals in their area providing information, and beating myths about what personal budgets are all about."
The report was positive about service users taking on champions' roles more widely but emphasised that they would need adequate support given the added strains of the responsibility.
Dr Val Williams, lead researcher for the project at the Norah Fry centre, says: "This could be the start. It shows how champions' work could proceed. It does need planning. It needs more time and it does need support."

Still hindered by old-style thinking

The stigma of mental illness is prevalent throughout society, writes Richard Shrubb. Even those whose job it is to work with people like me make assumptions about our capacity. You take someone in early stage treatment, sedated out of their brain on medication, and the truth is they barely have the capacity to tie two sentences together.
I went through that phase. On first-generation antipsychotics, I could go for hours between thoughts, sitting in a chair. But that's early phase treatment. As I recovered from the drugs daze, I started to be able to think ahead and plan, leading to a master's degree and a profession of my own.
The personalisation agenda should help us move forward to the place I am in, not keep us in our medicated states in chairs.
Historically, take-up of direct payments has been lowest among clients with mental health problems. A Social Care Institute for Excellence (Scie) briefing on implementing individual and personal budgets in social care, updated last year, said this may be due to staff attitudes and expectations of service users.
Sarah Carr, senior research analyst at Scie, says staff "assume people with such problems won't be able to handle them."
Councils have been set a target of having 30% of service users on personal budgets by 2011. But Mike Murkin, development consultant at regional improvement agency the South West Development Centre, does not think this will apply to mental health service users.
He believes the emphasis on keeping us safe from ourselves or others clashes with the essence of personalisation. "The mental health system has a genuine emphasis on risk management," he says. "Sometimes that agenda clashes with enablement."
Michael Patterson, director of social care consultancy Support Solutions, has a compelling metaphor for the balance between risk and empowerment. "It is about having a fence at the top of the cliff to prevent people falling," he says.
But the current approach is about straitjacketing us so we don't go near the cliff in the first place, whether to enjoy the view or because, in their eyes, we'd go there to jump off.
That's rather old-fashioned thinking, and goes against a progressive and modern approach to care and support.
Richard Shrubb is a journalist and mental health service user

Case study: Tony Martin, personalisation champion

'The crux of the problem is ignorance in the service teams'
Tony Martin has been speaking up for people with mental health problems since he started using services 15 years ago. In 2006 he took up a direct payment and became a convert to personalisation.
When the Department of Health started piloting individual budgets in 2005, he was appointed as a citizen leader tasked with promoting self-directed support.
Becoming a Mind personalisation champion was an extension of what he was doing already, though the cachet of saying he was working for Mind helped open more doors.
Martin aimed to increase the number of mental health service users with a direct payment in Derbyshire. As champion, he used his established links with the local primary care trust, the county council, government and with service users and service user forums.
He even held a conference on personal budgets to disseminate thinking. Attended by 140 people, including professionals, carers and service users, all groups felt they had learned a great deal.
Tackling professionals' attitudes and levels of knowledge about personalisation was key.
Martin says: "The real crux of it is ignorance in the service teams about how a direct payment can be used differently in mental health compared with in other groups, such as people with disabilities.
"It's no good thinking about how you can get people out of bed. It's about being able to give us new focuses and new interests in life and improving our quality of life."
The short timeframe of the fieldwork meant success was not so much about more people receiving a direct payment by the end of the project but about expressions of interest.
However, by March this year there were 52 mental health service users with a direct payment in Derbyshire, up from 16 in September 2009, when Martin started his work as a champion.
http://www.communitycare.co.uk/Articles/2011/08/05/114518/Rolling-out-personalisation-to-mental-health-service.htm